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Showing posts with label Chemo Cravings. Show all posts
Showing posts with label Chemo Cravings. Show all posts

Thursday, September 26, 2013

Surprise! Very Last Chemo... Hopefully EVER!

Chemo Surprise!

So today was a great day for surprises. I came to the hospital as usual for radiation and chemo and went through the motions like I usually would. When I went to meet Dr. D, they had quite the surprise for me, Today was my last day for chemo. Granted before I get super excited this IS contingent upon a few things. So. I have radiation for a few more weeks. Then I have surgery on October tenth for the sleeve. (I'll explain later). After that I start high dose radiation which will take two and a half weeks. I'll do a PET scan to see where we're at. If my lymph nodes look good, and I responded to the radiation the way I am supposed too, then I wont need any more chemo.

Because I'm never going to get cancer again (Because I think I've had just about enough with 4 bouts) today could be my very last chemo dose for the rest of my life. Never again will I have to inject my self with toxic chemicals. Worry about my liver, or my hair, or kidneys or any of the pain in the ass side effects. Never, Like EVER again! This is a really exciting encouraging thought.

While meeting with the nurse in Dr. D's office as she was telling me this I was ecstatic.
"OMG, so I'm officially done chemo after today, all my pooter hair has fallen out from the chemo and the radiation, so I'll be done chemo and I got a pain free bikini wax."
My mom shook her head, ::palm to forehead:: giggling while the Nurse AM replied
"Nothing Courtney says shocks me anymore."
Hahah best response ever. I love that my nurses and my docs know me well.

We went into Dr. D's office to talk about the surgery and whats to come. Basically they insert a plastic sleeve or shunt into my lady bits. Its so that when they place the high dose radiation into my pooter- it affects only the necessary cancer and not the surrounding healthy tissue.
"Ok doc, so this isn't going to break my pootang right? I mean when am I supposed to start the vaginal dilators."
My mom once again ::palm to forehead::
"Mom... I'm just trying to protect my investment."
The answer by the way was when I'm done the high dose radiation, and no it should not break my pootang.

SO my day consisted of my docs writing me for more pain meds.
"You need to stop being a hero and take the meds."
Option b, instead of taking the pain meds would be to take a break from radiation but I just want to be done with ALL of this. SO I was like ok, write em up. I can and will endure the pain, because as experienced today, there is no better feeling than hearing you're done. I can imagine how great hearing you're cured is going to be. How great "You can have sex again" is going to be. How unreal amazing "You can go back to Canada" will be. Oh and "Yes you can start working a few shifts again" ALL of these amazing things I can't wait to hear. They began today with "TOday is your last chemo treatment."

As I laid receiving my last chemo treatment it was weird. I mean, I wish I had have had a heads up. I would have brought cake. Lots of Carrot Cake. I LOVE the nurses on my chemo unit. Two of my favs weren't even there to say good bye. Luckily S and B were. B always hooks me up so that I can have a private room and bed for chemo treatments because they were 3+ hours long and I felt crappy. So sitting in a plastic wanna be lazy boy chair sucked in comparison to a bed, even a hospital one. Plus my mum got a desk to get some work and school work done. S slipped me a little going away present, which was the sweetest. She got me GORGEOUS silver earrings. Something I can get excited about wearing when I actually feel well enough to leave my house. I'm really going to miss them.

As I was leaving the unit, I looked at the empty chemo bag and it was the best F YOu ever! I got to ring the bell at the desk! Its a Lankenau tradition and I absolutely can't wait to ring my radiation bell, after my last radiation treatment! In fact its going to sound like a damn marching band is going through. The other patients better turn their hearing aids down.

SO I feel like crappola. The last dose of chemo is really taking its toll. However, at least I'm feeling like crap with a smile on my face. E, my pseudo older sister was in Canada and brought me back Quaker Crispy Minis in Dill Pickle, Salt and Vinegar and Ketchup. I'm like the happiest kid alive. You can't get them in the states and they're my guilty pleasure. So I'm munching on those whenever I have to take pain meds. You can't take the pain meds on an empty tummy.

I'm so close... yet so far!!


BOOM- Baby steps on the train of stops with amazing things to hear. One stop at a time.

Here we go! KOO KOO KAA CHOOOOO CHOOOO

Tuesday, September 24, 2013

Too Much Cheese- Oh Please.

Stauffers Mac and Cheese. It comes in a box in the frozen food section of the grocery store. Its something I know all too well.

If you had have asked me to eat it about a year ago, I may have vomited just thinking about it. But tonight, I'm nauseous, I'm hungry, I need to eat something, and Stauffers Mac and Cheese is all I want.

I hate what it represents, but I need to eat something.

When I was in Transplant, and maybe even before during the first round at Sick Kids in Toronto, (I can't remember) I was only allowed to eat and drink a few things. I refused to eat the hospital food. I still do. It repulses me. I could only drink Aquafina or Dasani water. Those are two brands that are pasteurized and with my compromised immune system in transplant, I had to be so careful. It was awful how strict they were. I couldn't have someone bring me McDonalds or Wendys if I wanted it. Foods had to be cooked to kill anything potentially harmful. When I say potentially harmful, I mean only to me. Not to an average person with an immune system. This really limited my options. This is where Stauffers and Cup O Noodle comes in. I would eat it for every meal. In fact typing this now, cup o noodles actually sounds pretty good.

When I'm out of the hospital, I can't touch these things. They remind me of chemo, and nausea and feeling terrible. They represent me being sick. So tonight, it hit me, I am sick, again. I was laying on my couch rolling around in pain, starving but having no appetite. While my mom went through a horde of options, none of which sounded appealing, I could taste Stauffers mac and cheese in my mouth.
"Mum, I can't believe I'm saying this, but I think I want Stauffers."
We hopped in the car and off we went to the grocery store.
"Are you sure babe?"
I couldn't believe it either. Now don't get me wrong, I LOVE Kraft dinner, but its not the same thing. Something about Stauffers, and my stomach on chemo- it just works.

When we got home, I popped it in the microwave. I was too hungry to wait to cook it in the oven. The smell reigniting the feeling of being in the hospital. Taking me back to that place, where this was something I wanted, I needed because nothing else would do. As I stirred it, mixed emotions floated through me.
You only eat this when you're sick. You only want this when you're on chemo. You're really sick and on chemo.
Its amazing how the simplest thing can reignite a feeling. A smell, a song, a touch, can take you right back to a moment that its so real you actually feel like its happening all over again.

For me, the smell didn't ignite the nausea or fear of being back in the hospital, because I am sick again and luckily not in the hospital but in the same mindset. We loaded up on the Stauffers; meatloaf, Salisbury steak, lasagne, noodles and meat in meat sauce. None of which sounds appealing to me, but when I'm nauseous and hungry - will be all I'll want. It will be interesting to ask me in about a year, when I've beaten this and am back to eating normally, healthy, how I feel about Stauffers, because I bet I'll be repulsed. Until then, I'm finally going to bed with a full tummy.

Its weird because last night a family friend brought my dinner, tortellini in a tomato cream sauce that was incredible, but my stomach wasn't having it. It's official, the chemo effects are taking action, I can only stomach Stauffers. Yay. Chemo tomorrow... lets do this. Its number 4 out of 6. Although they've added more radiation, I have yet to find out if they are going to add more chemo. The only plus side to this, I've finally lost all my pooter hair! YAY for never having to get a bikini wax again, or heck I hope its permanent. See, there's always a bright side ;)