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Showing posts with label Event Planning. Show all posts
Showing posts with label Event Planning. Show all posts

Thursday, November 14, 2013

It Hasn't Hit Me Yet, But Still 2 Tests To Get

"All visible signs of Cancer are gone... "
But... I still have two tests left. This was the first very big hurdle though, and I am very confident the tests are going to come back amazing. I just wanted to clarify for those who were unsure, and asking me. Yes you can't see any cancer, its unlikely but it doesn't mean it's not there, so we have two tests left to confirm the already amazing news. The odds are- Ever in my favor! (Hunger Games... haha get it? No... Ok moving on.)

There is nothing that makes you want to be as healthy as you can be than seeing other people living their lives to the fullest. It makes you want to be living your life too! Me- well I get great news and the response is usually the same, overwhelming.
"Courtney, You have no visible signs of cancer! What are you going to do now?"
I almost always reply to good news...
"Umm I'm going to sleep."
My theory is that it takes me a while to let something sink in. I overwhelm myself trying to get it to sink in. Ok, my recent news hasn't sunk in yet.

I don't think this news has sunk in because I still have two tests left. I've just gotten over the first MAJOR hurdle. I still have a PET scan and a PCR test. A PCR is a blood test used to detect whether my leukemia is back. It stands for "Polymerase Chain Reaction". Basically it is a genetic test to make sure my genes have not translocated. In English: when genes 15 and 17 switch places, its called translocation and it means my leukemia is back. Your genes should be 13.14.15.16.17.18.19.etc. etc. but when I have leumkemia or APML specifically, mine would be ordered 13.14.17.16.15.18.19.- the indicator for AML type 3. So with out the science lesson, we want them to come back in order with no hint of leukemia. (I understand this like the back of my hand but couldn't take and handle a science class if my life depended on it. Typical.)

The PET scan, well that uses radioactive dyes to detect abnormalities in the cells. We need that to come back with positive results too.

When both of those things happen I'm in the clear, officially. I have no doubt they will come back fine. I'm tired, and still feeling slightly off but I'm recovering from toxic chemotherapy and high doses of radiation where I was microwaved. A little recovery time is pretty much necessary.

The support has been so overwhelming and amazing! I can't even believe that I'm only 106 views shy of 42,000 since I started this journey 3.5 months ago. The skype dates, the emails, the letters and cards, the texts, calls and bbms, the care packages, the visits, the events, the facebook posts and messages. They've been my rock. They are what keep me positive and excited and in a weird way, safe. If I've forgotten to respond to some, I promise its the chemo brain. It really hates me. But I've gotten the well wishes and am soooo grateful!

I have 4 weeks left in New Jersey. I have people I want to see while I'm down here and things I want to do before I go home. So there may be some fun posts to come, sort of like in the beginning. No alcohol involved yet because my body is still in recovery mode. (I'm still craving that Extra dirty kettle one martini with extra olives, or a Ceasar, or frozen margarita. HMMMM yum).

I'm going out with one of my girlfriends this weekend- we're going to paint pottery because I'm such a bad@$$. I'm so excited I can't even handle it.

Hunger Games: Catching Fire next week with mom and the seestor and Jakk attack! (I actually may reread the first two books one more time before we go because I've already forgotten. Chemo brain is really coming at me with a vengeance.)

Hopefully I'll get to one more Eagles game, preferably one where we win because I'm starting to think I'm bad luck and would like to feel good juju vibes.

Oh and I'm absolutely going to try and go to some yoga. Yesterday morning, because I hadn't slept all night, I thought about going to the morning class. Keywords: thought. about. it. I even looked at the schedules. Baby steps. Who knows, next time I might get dressed and the time after that may even think about it, get dressed and then actually go!

So first things first on the normalcy agenda: stop being a night owl. Clearly I'm so excited to get back to work at the bars that I'm already on the sleep schedule required for working at them.

Then once I'm awake during the day, school work. I've started a little bit.

Yay! Just good things to come! I can feel it!


4 Weeks. 4 Weeks. 4 Weeks.

Sunday, September 8, 2013

Overcompensating At Life Just To Miss Out On It.

This morning while on the phone with someone, something clicked, and no it wasn't the sound of me hanging up. I was up very early, it was 9am. Granted I had not been to bed the night before but I had a chance to lay back and have one of my "Courtney Panic Attacks". Those happen, when I can't control the amount of things racing through my mind.

The reason for the call, or who it was with isn't important but it got me thinking. Why does this suck?

This week I had a terrible time coming up withing something to blog about. I felt that my updates were monotonous and had an air of "been there done that." I have things I want to write about in the future but I'm not quite there yet either. My motivation is wearing, this week wore me down.

When I'm at my best, I'm the most motivated person I know. I will work two jobs, intern, take on extra responsibilities. I attribute it to never wanting to be bored, but when I sat back and analyzed it, I had a different perspective.

Maybe its me not, not wanting to be bored but that feeling of I have a lot of catching up to do. I'm afraid of missing out on something.

My first diagnosis and treatment put me a year behind where I should have been in high school, which is why I graduated in 07 instead of 06. This never bothered me because I thought it was such a privilege to get to stay at Lakefield another year. Plus I had some pretty awesome friends in both grades, so it didn't bother me all that much.

I only graduated from LCS because I had to work my tail off till the final hours. Legit, it came down to hours whether or not I would finish high school in time to get to college. Everyone assumed I had graduated at my graduation, but my diploma was actually a piece of paper reminding me I had two credits to finish. The school let me walk, because they knew I would eventually finish. They didn't want to let me miss out on yet another thing, especially something as important as graduating. I worked my tush off that summer and nailed those two credits, with in hours of the Queen's submission deadline.

I LOVED Queens. I never doubted for a second I made the right choice. My first year was awesome but I was kind of a social recluse. I did great at school, but I chose to get an apartment off campus as opposed to living in residence. I knew my body and immune system couldn't handle the late party nights and dorm-esq living conditions. I was ok with that though, I would come home every night to my puppy Roxy, and do school work. It was conducive to good grades but not so much a social life. It was quiet and perfect for what I needed. Just as I was getting my footing socially, a week before exams, I relapsed.

I didn't end up graduating because when I went back to Queens after treatment, I had a lot to make up for. I was volunteering with the Make a Wish foundation. Working as many hours as they would let me at the bar. I volunteered with disability services. One would clearly say I was overcompensating. I loved my job, I loved my friends, I loved my extra-curriculars. I also passionately loved my classes, I just didn't have the time to focus on the work for them, or should I say make the time. Anytime I had left over, was for recovery. My immune system was still rebuilding its self. I slept, a lot. I got sick all the time, and my health was just not cooperative. However I was cancer free, so I had no complaints.

If I let something slack, I would be letting someone else down, i.e. make a wish, but if I let my own studies slip, the only person I was letting down was my self. I was always putting others first, and I still don't regret that. My priorities were not balanced but I finally had some fun too. I accomplished a TON. It was also a good learning point, because I got to see how badly the chemo affected my brain. My memory was gone. Bartending was easy, I memorized where the bottles were, knew which colors made which shots and it was my favorite thing to do because I didn't have to think about it. As soon as I tried to put the effort into my school work, my brain rebelled against me. I would have to reread notes hundreds of times just to remember a simple concept because I couldn't remember anything. I would read a page in a book, go to flip the page, and realize I didn't remember a thing I had just read. Chemo brain made me feel like the biggest idiot alive. Class was great because I enjoyed the lectures and material but taking notes was difficult because my mind couldn't handle the task of listening, writing, and absorbing. I would get so stressed out, I would either just sit there and listen and do the best I could or avoid it all together because I knew how stressed out I would become by feeling like a failure... at note taking. I eventually realized that I needed to take a break from higher education which was why I left Queens. My brain could not handle not dedicating 100% to school. I'm not in the situation where all I had to do was focus on school, I had to work, so I knew I needed to step back from the situation.

I hate that I didn't finish my degree, but I know that if I really want it someday, I can always go back. I'm stoked about the prospect of event planning. I am OCD because I've learned how my brain works. I need structure and organization and the little details are what makes remembering the bigger picture easier for me. I'm constantly writing everything down, I have lists and note pads galore. All qualities that go into planning an event. The education for it is online, work at your own pace, perfect for me. I'm excited to get into this field and can't wait to just get started.

However

When I'm laying in bed for a week, tired, nauseous, sore, my motivations weans. Couple that with homesickness and all I want to do is escape. That is where I am right now. I'm in my "need an escape phase". My panic attacks are back and I get overwhelmed at the most miniscule of things. My best friend K keeps reminding me (among other people)
"You need to just focus on your health!"
But by focusing on my health, I feel like I'm losing my future yet again. A girl with big dreams to plan huge beautiful events, in different cities and to travel and motivate is being reduced to a girl who wants to hide in her bed. I have difficulty waking up and blogging. In fact, I have difficulty getting out of bed. Its my cocoon. When people ask me to do something, it feels like the BIGGEST task in the world. They say if you want to get something done, give it to the busiest person, well I get that, because I can't get anything done. I can feel myself slipping away and there's nothing I can do about it.

I find my self losing myself day by day. I'm the most self assured person I know, and know this is a phase but fear the outcome. Its so hard to recover from an experience like this, and I know this having gone through it three times already. Every time I start to get ahead and actually put some savings in the bank, they're gone, because I'm sick and have to use them up. Once I feel like I'm getting caught up on my student loans, suddenly I'm behind again. My poor car is dying a slow death, because I keep telling myself, deal with your loans, and your bills and soon enough you'll be able to invest in a new one. But that time just gets put off again and again because my health wont cooperate. I get started at an awesome job, working my way up, and boom I have to take a break. I get a sweet job interview, sorry can't go. Meet an amazing guy, WHOOPS can't see you anymore. When will I have my time, to be on a similar level with people my age. They've all graduated and some are getting married and having kids. I'm not even asking for that, I'm just asking for my chance to work towards my future at my life so I can start living my life. At this rate I'm going to be too selfish to adopt children, because I wont have lived my life, experienced my life enough to give them the lives they deserve selflessly.

I picked a career that I can completely dive into, because I know my work is going to be my life. I don't want to have to feel like I'm wasting anymore time to try and get somewhere that I'll enjoy, I want the journey to get there to be just as enjoyable.
I have friends that are literally keeping me alive. I have parents who thank god are taking care of me, because right now I can't take care of myself. I know how lucky I am.

Why does life keep teasing me? Lets me get so close to starting to achieve my dreams and goals and just as I'm about to taste them, pulls them right from under me like some joke.

I'm homesick. I miss my friends, my work, my fam. Mostly I miss my independence. I miss being in control of my life. No wonder I'm an OCD control freak, because I rarely have control in my life, that when I do, I cling to it like no other. Just ask the girls at work about the spoons. (I really do apologize girls, but my logic does make sense ;)

Regardless, I know I will get back to the road that will lead me to becoming the person I want to be. I clearly should never be trusted with the directions because I've taken more detours than a dyslexic cabbie.