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Showing posts with label High Dose Radiation. Show all posts
Showing posts with label High Dose Radiation. Show all posts

Monday, December 9, 2013

Very Last Doc Apt of 2013

Today is my very LAST doctors appointment of 2013. Hormone Therapy (where they will insert pellets into my hip that time release the hormones into my body- because of course I was allergic to the less invasive forms.) Regardless- MY VERY LAST APPOINTMENT OF 2013. :D

It feels like just yesterday when realistically it was almost a year ago that I was looking my dad in the eye and saying
"I don't know what or why but something is wrong."
I had symptoms, I was stressed, I was tired but I just didn't believe it. Now here I am leaving battle and walking into peace negotiations.

No doctor has a magic ball and can tell me conclusively what I want to hear. They can never say with certainty
"You are cancer free."

I have to now be proactive about living as healthily as I can and as consciously as I can. I have to now listen to that voice. When my gut says to me again
"I don't know why or what but something is wrong"
I will bang down the doors of heaven until I figure it out and shut that voice up. I read a book a long time ago that said our gut is there for a reason. I can't remember but something about it being an evolutionary defense mechanism. Well gosh darnit, that makes sense.

So my PET scan lit up because of inflammation caused by the residual effects of radiation. The radiation takes months to leave my body. Which explains why I've been so tired and run down. I still have toxic radiation coursing through my veins. The post effects of the treatment, they don't disappear over night. On top of that, I'm a rare case/bird and therefore don't heal like the average person. Also the doses of radiation I received were extremely high. My lymph nodes are clear and that is huge! HUGE!

Basically Dr. D told me,
"You need to relax, de-stress and let your body heal. This is not going to happen over night, it will take months for you to be clean of the radiation and feel normal again."
Normal? What is normal? That is seriously a term I've forgotten over the years. Relax and let my body heal, UGH this is going to be so hard for a girl who can't sit still. However whenever I tried to test this theory my body reminded me to sit down, shut up and listen. I went out with a friend on Friday for another friends birthday and through out the course of the night had two SMALL glasses of wine (ANTIOXIDANTS). With multiple glasses of water in between and a HUGE dinner. (Ps- yes those are extensions.)
However the next morning after running errands with my mom, I ended up puking on the side of a highway.
"Mom, I think you should get into the right lane."
"Why honey? Is everything ok?"
::As she was pulling into the right lane::
"Um No"
:: Open door, proceed to puke, profusely.:: The rest of the weekend sucked. It was a lot of the same thing. My sister bringing me gingerale and zofran (Anti Nausea medication). It was most likely just a stomach bug, but one night of very simple social interaction, brought me back down to real life.
"YOU ARE RECOVERING"
is basically what my body was screaming at me. Or it could just be a coincidence. But still, really?

So the news from the doctor- can't be perfect. I will have check ups. All the time. My first being in January. Pet Scans, bloodwork. I'm never done this fight. Now it's just preventative and I'm ok with that, because at least I'm here to have a life to be preventive with. This in no way means I'll stop living. Not even close, not even a little bit. If anything, it means I'm just getting started.

I'm packing up my bags because I'm heading home. I'm going to have to start slow, but at least I get to start!

Wednesday, October 30, 2013

Freedom Bell bc I'm Done Radiation Hell.

FInally Treatments are over. Now granted... this is just because the scheduled treatments are over. I'm not getting excited until I hear a doctor say
"Hey Courtney- good news. Your cancer is gone and you can strictly focus on recovering to get back to your life because there will be no more radiation rays or chemo to hinder that process"
BOOM! Until then, I have one week to begin recovering, until I see that doc.

People have been worried because I have not been posting but quite honestly there has not been much to post about. The horrible process that is High dose radiation is too difficult for me to talk about. Its too painful. It ruins me. A good friend told me on Sunday that I have managed to create a bubble for my health, and I am on the outside of that bubble. All because I told him
"If the biggest problem in my life right now, is whether a man will be able to love me because I can't have children, and that its something I should discuss early on in the relationship, i.e. is adoption ok? Then I am really quite blessed."
My guy friend K looked at me, stunned and said,
"Courtney, that shouldn't be the least of your worries, shouldn't you be worrying about your health? I mean you have a considerable amount to worry about"
To which I replied
"No, because I know I have a battle, I know I'm fighting, I know it sucks and its hard and difficult and it is taking its toll on me, but I know I'm going to beat it, so the future is where I'm focusing my efforts."

This all in the same day that I managed to puke my brains out non stop. I'm the only girl I know who can puke non stop, barely eat and not lose a pound. DAMN YOU body defense mechanisms.

SO today was my last treatment. My favorite nurse wasn't even there to say good bye which was heart wrenching. She's pregnant and had a fever and I hope she's ok. (She called the next day to apologize for missing me and I'll stop by to visit her next week!) I have a bunch of other good ones there though, so I had nothing to worry about.

This morning, my mom was out of town for work, so the task fell upon my sister to take me. She not only stepped up, but was super sister! I medicated hard core for the procedure. I'm already sore from the last few and it hurts regardless so I knew today was going to be the most painful. It was. I got very excited in the car though upon the realization that Valium has what appears to be heart in the pill. (I know its the letter V) But I was excited because
"OMG Valium LOVES me! It has a heart to tell me SO!"
In the car I was feeling wonderful. My cocktail of Valium, Ativan, Percocet, Codeine and Dilaudid was mixing quite nicely and I was right out of her. We walked into the hospital, I deactivated our parking chip and showed my sister how to use my Ipad. We were then sent into the exam room and it was as if I had all of the narcotics sucked directly out of my veins. I took another percocet and Valium but I knew they wouldn't have enough time to kick in. The pain was going to be unbearable today.

Dr. D began to insert all the wonderful god knows what of tools and I winced and teared and cried. Today was the first time, that I full blown cried. It was awful. The pressure, the pain (when I say pressure, thats what it feels like, an intense pressure causing the pain). I couldn't stretch any wider, I couldn't fit anymore in there. The radiation makes the skin feel like the worst sunburn and he was stuffing me like a turkey on thanksgiving day, putting intense pressure on the tender flesh. It made me never want to ever stick anything in there again, yet I still managed a
"So how long until I can have sex again?"
The doctor and intern laughing because of course that is what I would be thinking. The answer by the way- not for a long while. There is a lot of healing that needs to be done. Not that I have anyone I would be sleeping with anyway. Some serious trust has to be built up in that department. SERIOUS.

I couldn't move once the apparatus was inside me. Normally I could at least scooch and the pain would subside slightly but no way in hell. I was moved on to the stretcher by the doc and nurse and lay there in more pain than I thought possible. The extra perc and valium had clearly not kicked in yet. D, one of the nurses tried talking to me while I waited to be transported to the CT scanner, trying to keep my mind off the pain. It helped but the tears did not stop flowing. I was so proud of my sister who stayed strong the whole time beside me.

Once in the CT scanner, the tears continued to flow. I even tried pinching myself to see if I felt pain elsewhere maybe it would lessen the pain below (pain displacement I think its called). Not the case. The nurse stopped the CT to see if I was ok, because I normally stay so still. But with the pinching and trying to wipe away the tears that wouldn't stop, I apologized and tried as hard as I could to grin and bare it and stay still.

After Ct we were moved to the mountain room where we waited for the radiation oncologist and the physicist, to come up with their plan of action. My sister fed me Gingerale and a dilaudid. The pain was not subsiding. My tolerance has clearly reached epic proportions for the medications. We watched an episode of Modern Family on my ipad and then it was time to go. MY sister back to the waiting room and me into the little dungeon of radioactive mountains as I call it. They played Rod Stewart for me, (He's kind of like Michael Buble and I'm not totally mad about that.) because I didn't like Elton John last time. (I know I know... but I can't help who I like.) I closed my eyes and tried to imagine I was in Paris. Walking on cobblestone streets wearing my Christian Louboutin black pumps. I was still in excruciating pain but the images of the Eiffel Tower and red soled dreams kept me in check. I breathed and clutched the collar of my sweater. I whispered to my self, this is almost over. You are almost done.
The doors opened and the doctor came in to take out the radiation apparatus. It's just as painful to take it out, but its a much quicker process and as soon as the pieces come out, there is an instant flush of release... a pleasant sigh of relief. The nurse and my sister helped me redress and step down off the stretcher.
I am done.

After I was dressed we went to the waiting room to wait for some prescriptions to be refilled. Its tradition that when one is done their radiation, they get to ring a bell in the waiting room. On my first day I asked,
"What the hell is the liberty bell doing in the waiting room"
but now I understand. The real one signifies Freedom for Philadelphia and this one signifies freedom from radiation for me. Nervous and emotional, from the medications, I said
"Hell yes I'm ringing this and sorry guys its going to be loud."
All the nurses and doctors gathered around and the waiting room clapped. It was very cliche but I'm glad I did it. I wanted so badly to ring it on the first day and was finally getting my chance.

I'm not going to get excited about being done treatment or being "Cancer free"... not yet. Although my doctor can no longer see any cancer, tests must still confirm it. I need a little time to heal and then in a week and a half I get to go and see my gynecologist oncologist who will set up the tests to confirm. Until then I rest and heal.

On the way home, I finally had an appetite. We got five guys burgers and fries, and I brought peanuts for the road. I ate every last bit. So far they have not come back up, but I'm not holding my breath.

This blog for me thus far has been my outlet and a place for me to talk about treatment. Now, once I do get the desired results, it will be about reintegrating back into normalcy. I'm sure it will be just as interesting if not more so because it will be about dating, Love, Sex, Health, Work, Coming off my pain meds and if my sister has it her way rehab lol. This war is far from over, but this battle may have been won.

Wednesday, October 16, 2013

High Dose Radiation With A Phantom of the Opera Music Station

So the first high dose radiation was unsuccessful. I was too sore from the surgery the day before. On lots of percs and dilaudid and I still couldn't handle it so they post poned it until Tuesday.

My mum was out of town for work in St. Louis. This is all good and well, but I couldn't drug up and drive to the doc by myself. My sis was going to take me but this is a little different than just sitting in the waiting room. Luckily my "big sister" (and I'll explain) was able to take me. Erin grew up with me, we knew she and her family whilst my dad was playing for the Caps. She was basically like my babysitter, but she was too close to our family to be JUST a babysitter. She came with us to LA and then to Jersey. SO to me, she's always been my big sister. So long story short, she was able to take me. She showed up with Starbucks- she knows me too well!

So we were off. I was blabbering like an idiot. I could feel myself literally not able to stop talking. I don't know if I was just nervous, hadn't seen her in a while and was catching up, or if the anti anxiety meds were turning me into a chatty Cathy. Could have been all of the above but the beauty of it, is Erin's a beaut... she let me go.

We got to the hospital and it was a blur. I remember being really nervous. I was obviously conditioned from last Friday to be nervous as hell because it hurt like hell last week. You know you're freaking out when everyone keeps asking if you're cold but its just because you have
"I'm F******* freaking out shakes!"

When we got there I deactivated the parking chip and gave it right back to Erin. I knew there was no way I was going to remember it. We headed into the exam room and I stripped down. The nurse went over things and I got a lot more anxious. I had taken my anti anxiety pills and pain meds before we left the house so they had definitely kicked in, but my tolerance has grown significantly and I wanted to be out cold. (Well not out cold, but not feeling they way I was feeling. Nervous, Scared, Pain.)

I popped one more on the table and then Dr. D2 came in and got to work. I laid there and it felt like they were inserting 100 dildos laced with thorns. There was a lot of pressure. I said to Dr. D2, because I really don't hold back
"I imagine this is what it would feel like to have sex with a guy who has a massive dick that you're clearly not prepared for."
hahaha laughs all around but I was dead serious, that $#!% hurt. He had to clip something to the something and the something. But I just felt lady bits getting all caught up in there. I was like "WHOA!" That I imagine is what it feels like to have your junk zipped into your zipper. In all honesty I joke, but there were tears. It's not a natural feeling, its a violated feeling. Its one thing to feel pain, its a completely different thing to feel such pain in such a vulnerable place. It scars you... mentally.


Once we FINALLY got everything set up, they wheeled in a stretcher. Clearly not an easy feat, these rooms are small. They had to be careful moving me because they didn't want to undo all the hard BDSM they had just set up inside my girly bits. I was then moved into the catscan room. They did a catscan to make sure it was in place properly. I don't know how it couldn't be because it felt like it took forever to insert and wasn't pleasant.

After the Catscan we went to the mountain room. You'll see why I call it that later. Personally I would have preferred a jungle-esq waterfall scene to the mountainside lake Sound Of Music scene but at least they decorated.

Erin and I sat for a while, I played on my Ipad and showed her... well I'm sure it had something to do with shopping and pinterest. One of my fail safes. After a while I met the physicist. I was really hoping for Sheldon Cooper but then again this guy was working on my Pootang so maybe I was glad it wasn't. I mean it would be preferable for him to have some experience down below, something I'm sure Sheldon Cooper (Big Bang Theory) in all his intelligence is lacking.

They wheeled the stretcher into the Mountain room and asked if I wanted music. I said sure, and was like ready to go. The huge radiation proof doors shut and I felt like I was on a space shuttle in a tiny compartment on my way to the moon. However good pain meds can induce that feeling even in the largest of spaces. The stretcher did barely fit.


The music: Phantom of the Opera. ::Palm to Head:: as Erin and my mum both cleverly pointed out when I told them... "Should have been Sound of Music" considering the mountain scene. I had actually been talking about Phantom of the Opera after my NYC trip with my mum and sister. I wanted to see it, they both couldn't believe that I hadn't. Also a girl my sister went to Middle and High School with, and was in plays with was just cast in the off Broadway production. I'm not surprised, from what I remember, girl has a set of pipes like no other and the last time I heard her was when she was in seventh grade. As the doors reopened I asked
"and who picked the music?"
It was of course my Eagles loving doc- who just so happened to be an opera-broadway aficionado too. I checked and saw that they used CD's, It should come as no surprise that I'm bringing Britney with me on Friday. Old School Britney, Baby One More Time and Oops I did it Again all up in the radiation hiizzous. Or lil Wayne. I don't know why, it just seems fitting.

When everything was said and done, they just pulled all their kinky gadgets out. Like it was no big deal. I got dressed and we were outta there. The meds were really hitting me so I barely made it home with out dozing a few times. I was exhausted. I got home, stripped, crawled in bed and was out cold. We got home at around 1:30pm. I was out cold until 5:30 am the next day.


My mum woke me up for dinner, but I barely remember that. She had brought me my fav, Pasta Bolognese. I had had Stauffers Mac and Cheese the day before and it ended up all over my bathroom floor. Conveniently I decided to puke it up after my sister left and decided to go and visit a friend. She definitely gets the nurse of the year award.

So High Dose Radiation SUCKS. It messes with your head. It makes me hate my lady bits, and with so much pain taking place down there, how am I ever going to want to have sex again. I mean, I'm being programed to associate them with pain, so unless I adopt a new BDSM fetish, this is going to suck. But the treatment is working... that is the plus side to all of this. So bring Friday on with a vengeance, I'm excited to get drugged up and its go time. I just have to remember...


Thursday, September 26, 2013

Surprise! Very Last Chemo... Hopefully EVER!

Chemo Surprise!

So today was a great day for surprises. I came to the hospital as usual for radiation and chemo and went through the motions like I usually would. When I went to meet Dr. D, they had quite the surprise for me, Today was my last day for chemo. Granted before I get super excited this IS contingent upon a few things. So. I have radiation for a few more weeks. Then I have surgery on October tenth for the sleeve. (I'll explain later). After that I start high dose radiation which will take two and a half weeks. I'll do a PET scan to see where we're at. If my lymph nodes look good, and I responded to the radiation the way I am supposed too, then I wont need any more chemo.

Because I'm never going to get cancer again (Because I think I've had just about enough with 4 bouts) today could be my very last chemo dose for the rest of my life. Never again will I have to inject my self with toxic chemicals. Worry about my liver, or my hair, or kidneys or any of the pain in the ass side effects. Never, Like EVER again! This is a really exciting encouraging thought.

While meeting with the nurse in Dr. D's office as she was telling me this I was ecstatic.
"OMG, so I'm officially done chemo after today, all my pooter hair has fallen out from the chemo and the radiation, so I'll be done chemo and I got a pain free bikini wax."
My mom shook her head, ::palm to forehead:: giggling while the Nurse AM replied
"Nothing Courtney says shocks me anymore."
Hahah best response ever. I love that my nurses and my docs know me well.

We went into Dr. D's office to talk about the surgery and whats to come. Basically they insert a plastic sleeve or shunt into my lady bits. Its so that when they place the high dose radiation into my pooter- it affects only the necessary cancer and not the surrounding healthy tissue.
"Ok doc, so this isn't going to break my pootang right? I mean when am I supposed to start the vaginal dilators."
My mom once again ::palm to forehead::
"Mom... I'm just trying to protect my investment."
The answer by the way was when I'm done the high dose radiation, and no it should not break my pootang.

SO my day consisted of my docs writing me for more pain meds.
"You need to stop being a hero and take the meds."
Option b, instead of taking the pain meds would be to take a break from radiation but I just want to be done with ALL of this. SO I was like ok, write em up. I can and will endure the pain, because as experienced today, there is no better feeling than hearing you're done. I can imagine how great hearing you're cured is going to be. How great "You can have sex again" is going to be. How unreal amazing "You can go back to Canada" will be. Oh and "Yes you can start working a few shifts again" ALL of these amazing things I can't wait to hear. They began today with "TOday is your last chemo treatment."

As I laid receiving my last chemo treatment it was weird. I mean, I wish I had have had a heads up. I would have brought cake. Lots of Carrot Cake. I LOVE the nurses on my chemo unit. Two of my favs weren't even there to say good bye. Luckily S and B were. B always hooks me up so that I can have a private room and bed for chemo treatments because they were 3+ hours long and I felt crappy. So sitting in a plastic wanna be lazy boy chair sucked in comparison to a bed, even a hospital one. Plus my mum got a desk to get some work and school work done. S slipped me a little going away present, which was the sweetest. She got me GORGEOUS silver earrings. Something I can get excited about wearing when I actually feel well enough to leave my house. I'm really going to miss them.

As I was leaving the unit, I looked at the empty chemo bag and it was the best F YOu ever! I got to ring the bell at the desk! Its a Lankenau tradition and I absolutely can't wait to ring my radiation bell, after my last radiation treatment! In fact its going to sound like a damn marching band is going through. The other patients better turn their hearing aids down.

SO I feel like crappola. The last dose of chemo is really taking its toll. However, at least I'm feeling like crap with a smile on my face. E, my pseudo older sister was in Canada and brought me back Quaker Crispy Minis in Dill Pickle, Salt and Vinegar and Ketchup. I'm like the happiest kid alive. You can't get them in the states and they're my guilty pleasure. So I'm munching on those whenever I have to take pain meds. You can't take the pain meds on an empty tummy.

I'm so close... yet so far!!


BOOM- Baby steps on the train of stops with amazing things to hear. One stop at a time.

Here we go! KOO KOO KAA CHOOOOO CHOOOO